We took Caroline home on hospice care, but she did very well at home and was not on any pain medications. Around 5 weeks old, we started her on a medication for acid reflux because it appeared to be making her uncomfortable. From what I’ve read, GI issues are common in trisomy babies. The medication was given orally by syringe in her cheek pocket.
Caroline LOVED this medicine! It had a syrupy cherry flavor that I’m sure made her taste buds dance because she was being tube-fed; her tongue was usually missing out on all the action. Once she got a taste, she would start smacking her lips and we would bring over the pacifier. She would suck for 30, sometimes 45 minutes! Seeing her so happy and sucking on her pacifier always made me so proud.
After she took her medicine, we’d cuddle until she fell asleep.
Oh, how I miss looking down and seeing my perfect child sleeping peacefully on my chest.