Mothering Caroline Grace

learning how to be the mom of an angel


1 Comment

NILMDTS Remembrance Walk

My husband and I are attending the Now I Lay Me Down To Sleep remembrance walk in Colorado this year.  Our registration is paid and plane tickets are booked!  I am getting more and more excited for the weekend that will be all about Caroline.

We ordered custom tees yesterday that we will wear during the walk.  They are awesome!  On the front is a picture of the sun (which Caroline loved) with her name and “Beloved Daughter, Trisomy 13 Miracle.”  On the back, we wrote, “Proud Parents Walking for Caroline and Trisomy 13 Awareness,” followed by a beautiful picture of our baby girl.  We made sure to include that Caroline had Trisomy 13 both to raise awareness and in hopes of meeting other parents at the walk.  I can’t wait for the shirts to come in!

We are so thankful for the photographs taken by NILMDTS and the support they have provided.  I am so grateful to the photographer who sat in the hospital waiting room at 3am waiting for Caroline to be born.  The NILMDTS Facebook page has also been a great source of support in our grief.  I anticipate that the walk will be lovely, and can’t wait to spend it honoring Caroline’s memory.  We love you, Miss Caroline!


Leave a comment

A Day at the Zoo

This past weekend, my husband and I went away to the city to spend some time together.  We visited the zoo, and as we went to the visitors center to get a map, we saw a group of about 4 children with special needs and their parents.  The children were in the type of wheelchair that I only dreamed of needing for Caroline.

Something struck me when I saw this group.  I felt a sense of camaraderie with them, even though I carry Caroline in my heart.  I am the mother of a child with special needs, even though no one can see it.  I thought it was wonderful that they had all found each other and were able to have a beautiful day at the zoo together.  I didn’t have support from other parents like this when Caroline was here with us.  I felt an urge to talk to them and hear their stories, but I held back.  I didn’t want to disturb them, so I kept walking.

We got our maps and came out of the visitors center, and they were gone.  I asked my husband if he had noticed the children, and he gave me a knowing smile.  Of course he had.  Caroline is always at the forefront of our minds, and seeing those families was a glimpse of what could have been if she was still here with us.